Mayo Day 1

The Mayo Clinic is awe-inspiring. I mean, I don't expect them to heal me in the few days I'm here, but I have confidence that if anyone in the world can figure out what is going on...it'll be the guys here.

The clinic is just this huge (insanely large) building with 3 wings and 20 floors (including a Subway level which connects it with all the surrounding buildings). Each wing of each floor specializes in something. So when I checked in this morning with the receptionist at internal medicine, I was in the system. By the time I had finished giving my history to the doctor a couple of hours later, I had my itinerary for the day. They just printed it for me and I went from floor to floor getting labs and tests. When I got to a reception desk and told them my name, I was already in the computer and on the schedule. It was so efficient. *sigh* If only all healthcare facilities could see how this place runs....I'm swooning at the organization. LOL

I spoke to my coordinating physician this morning and he has referred me to several specialists which I will see as soon as they are available. He also ordered several tests, labs, etc. Once I have seen everyone and done everything he has asked me to, then we will meet again to reevaluate. He gave me the basic initial reaction I've had from all my doctors: this is a complex case that may or may not have myasthenic properties due to the facts that I don't have the classic MG symptoms and am not responding well to aggressive MG treatments. He did add, however, that their goal is not to treat the symptoms so much as determine the underlying cause for them. I appreciate that--that's what I want, too. Find the cause and fix that, and hopefully the resulting symptoms will resolve themselves.

Overall, I am very impressed with this facility and hope for the best. :) If we can make progress, these doctors will be my new heroes.